So I got the scan results as promised. As of 17 November 2009, the tumor in my neck was exactly the same size and no other lymph nodes showed any signs of invasion. There are some micronodules in my lungs, but a real experienced retired cancer nurse told me that, in 90% of cases, the second round of radioactive iodine does those in. Here's hoping!
My boss agreed to let me borrow the work laptop to telecommute on Tuesdays and Thursdays. I am really hoping that this will help my body rest a bit so that the nasty effects of the hormone treatment will be less of an issue. I'm really glad that this overdose of hormones has kept the cancer from metastasizing because being forced into hyperthyroidism has been absolute shit.
My nuclear doctor called me back today to say that I could not see the surgeon before 5 Jan 2010. Actually, what she said was that the delay was perfectly normal for a surgery after meeting with him in late November. I explained that I did not meet with him in late November. She was surprised, she did not realise that the 5 January mtg was not my surgery but, in fact, the appointment to set the date. There is obviously some great communication going on between the members of my cancer team. This lack of organisation is beginning to worry me and make me lose faith in their competence. I demanded that I receive the results from my scan performed in mid-November. She said that she'd send them right to me, but insisted that I need not be worried about the delay.
If this metastasizes between now and then, they'll wish they'd been more careful. Because I will sue them, the secretary and the hospital to within an inch of their miserable little lives. Doctors like this should not be allowed to practice. They are a menace to every patient, not just to me.
I had to wait until 30 November to hear from my endocrinologist that my thyroglobulin antibody count (taken 15 October) had fallen from 69 (July) to 25 (October). Great news, right? I am happy because it should mean that my thyroid cancer is being contained. Why did I have to wait for good news that would have helped me stay positive about beating my cancer? What about all the sharp pains in my breasts and arm pits that none of my doctors want to hear about? Why do I have to fight tooth and nail to have results from my scan that would SHOW ME whether this has metastasized into my breasts, bones or lungs? I am obviously not a priority for this group of doctors. And I am afraid that none of their patients are important to them. It's a wonder anyone in France ever survives cancer.
So here's the recap:
No meeting with surgeon until 5 January 2009. Should be getting results of scan from hospital soon, which I will be forced to interpret myself because I cannot get in to see a doctor at the hospital. I still say thank goodness for national health because, if I were in America, I would be bankrupt and probably dead by now. With a pre-existing cancer, I would not have been eligible for insurance in the first place. That said, I pay out the ass in taxes for national health. As a cancer-afflicted tax payer, I deserve better. Every tax payer in France deserves better medical treatment than what is currently 'available'.
Sad news.
We had to give Perla back to the adoption people because she was literally tearing herself apart when we weren't with her. She manifested almost every sign of canine stress imaginable all the time except when sleeping. When she saw the foster home lady, she ran to the lady's car and didn't look back. At least, she'll be happier and safer there. We tried our best to let her know that she was safe and loved with us, but it didn't work.
We've decided that the next dog will be a Corgi puppy. Not sure when. I know and love the breed and their temperament suits ours perfectly. Besides that, I no longer trust rescue groups in France. After having been warned about them, I gave one the benefit of the doubt. They said that they had a feeling that it wouldn't work out after allowing us to adopt her! What a horrible thing to put a dog through! They have no business running a dog adoption association.
My next news is not so much sad as enraging. My surgeon had a death in his family so we received a last minute call to cancel my meeting with him tomorrow. Ok. I am sorry for his loss, etc. The secretary then forced us to take a date in January 2010 and said that my cancer wasn't serious. Isn't all cancer a little serious? I do plan to call back and ask if there is no way to be seen earlier and to ask for my results. I do have the right to see my results at least and talk them over with one of my doctors. Don't I? Just another example of my fuckwit cancer team. I understand that this is a hard time for the surgeon, but his staff need to get training on their people skills. There is no psychological help in France for people who have cancer from what I can tell. I have asked about it at the hospital -- nothing! So not only do they deprive you of the psychological help you need, but they also belittle your cancer and send the message that they don't care if they cure you or not. Every chemo session my father had, he had to fill out a questionnaire about how he was feeling emotionally as well as physically. Questions included, 'How often do you contemplate suicide?' It was all taken very seriously. Not in France, though. You're just another burden on the national health so they string you along. I almost have the feeling that they want it to metastasize further or are hoping that I'll off myself so that they make a dent in their case load. There are other surgeons who could see me at the hospital to at least give me my results. That would be the professional thing to do. But when one is in this situation and one has the sense that none of the doctors care about one's case? Guess what that does for a cancer patient's morale, fucktards? One day, you will also have cancer. I guarantee it with the poor management of nuclear waste in France. Then you'll get to feel this pain and this fear and this rage. I'll probably be dead so I won't even get the chance to gloat.
First, we're happy to announce that the team has identified and fixed the issue with the YouTube conduit; you can now find and add videos from YouTube to your library and posts. As always, thanks for your patience!
The other news we have today is about a new addition to the Six Apart family: TypePad Micro, a new free level of TypePad that is streamlined for microblogging. We see a new form of blogging emerging that lives between the quick status updates of Twitter and Facebook and the long-form posts of "classic" blogging; TypePad Micro is designed to meet that need. You can read more about TypePad Micro in Chris Alden's post on the Everything TypePad blog.
A lot of the new capabilities we've added to TypePad this year were actually inspired by some of the best things about Vox: favoriting, member profiles, a dashboard to follow other bloggers, and easy ways to post content from other social media sites. But the things that make Vox different from TypePad are still there: Vox has always been -- and still is -- the best place for "friends and family" blogging, where you're in control over who sees what. TypePad, on the other hand, is built for the blogger who wants, no, craves, attention.
Do you have a passion or interest you want to share with people beyond your Vox neighborhood? If so, we'd love it if you tried out TypePad Micro. Maybe you've always wanted to start that obsessive blog that's just about waffle restaurants. Or want a place to share videos of your favorite band (Jonas Brothers, anyone? Anyone? ...). TypePad Micro's great for those topic-specific blogs. Take it for a spin and let us know what you think.
On the Vox front, our designers are working on some cool new themes (coming soon!). We'd also love to hear your thoughts about where we should take Vox in the coming year. What are the key things you'd like to see for Vox? If you've had a chance to use TypePad this year, what are the features there that we should bring over to Vox? And, if you're thinking big thoughts, how could we connect the Vox and TypePad communities in order to bring together bloggers and their shared passions? Your feedback is really important to us, so please leave a comment here, or shoot me a message.
And again, thanks for your patience as we found and fixed the YouTube bug!
~ daisy
As many of you have noticed, the YouTube Conduit is not working. I am so sorry about this; I know how frustrating it is.
The team is looking into how to get this fixed and I will update you as soon as I hear something. In the meantime, not all is lost... There is a work-around for posting videos.
When you're in the Compose Screen, just click on "embed." Ignore the fact that it says "Widget" before everything because you can definitely use this to embed videos as well. You'll just need to input the embed code from the video, enter a title (if you want) and hit OK.
It might not show up perfectly in your compose screen, but when you hit "Save," your video should appear just the way you wanted it to.
Hopefully this will allow you to keep posting videos while we figure out what's happening on our end.
As always, thanks for your patience.
Hello again, reader.
My husband fixed the netbook! So now I can blog again.
So, what's new?
Cancer update:
°Another surgery. Scan on the 17th November, meeting with surgeon on 24 November to set surgery date.
°Another radioactive iodine treatment probably in March 2010.
°Levothyrox dose is still too high, but I get to take a lower dose Friday through Sunday.
Novel Update:
°Working on characters and their backgrounds. Oddly, the plot is forming more solidly through this process
°I am not doing NaNoWriMo. I have metastatic thyroid cancer and am training a dog with serious abandonment issues.
Dog? Dog? What dog?
Rather than adopt a greyhound (we were having a hell of a time getting associations to respond to us, most still haven't at all), we went through an adoption association in the Ile-de-France region. We were surfing adoption sites when I saw Perla, a three year-old Mini Pinscher who was abandoned in La Réunion. The S.P.A. there figured she'd have a better chance of being adopted in France. I fell for her immediately and we started the process.
She is a sweet girl as long as she's not alone. Once alone, she has panic attacks brought on by separation anxiety. We're working on that. Doing clicker training, which is a blast. Fun way to teach, to learn and to bond. She has sit inside the house down perfectly. We're working on outside the door and in the elevator. I can't blame her for not wanting to stick her bare butt on the cold, wet ground outside. Next up, place. Very important. Her favourite things are cuddling on the couch with me for hours, breakfast, dinner and her Kong toy. It's the only toy she understands how to play with. The others are a mystery to her. She loves to go on walks so much, that I have lost another 4 pounds since we got her. The other day we found one of Chester's stray hairs on her forehead. We chose to see this as a sign of approval from the beyond. I think he really would have liked her. They would have been great nap buddies. As hard as the separation anxiety can be, we're going to work through it. She'll learn that we won't abandon her. The vet is trying to help by giving us a pheromone difuser and some doggie downers. I have contacted the adoption association for advice, tricks they used to have her stay calm when she moved in with them. No response at all. I find that odd because they made so much noise about us staying in touch and blah, blah, blah. We ask for any help and they vanish. Very weird. We'll look into crate training as well. The Kong does not seem to be enough to overcome our absence. We'll get there.
I think that is all the news I have for now.
Go forth and fill your libraries with media.
Seriously, thanks to everyone for being so amazing and patient. You are the reason I love Vox.
I was just told that the Amazon Conduit will be fixed by tomorrow. I will post here as soon as I get word that it's back up and running.
I know this has been frustrating and I am sorry there wasn't more I could do to make it less so. I really appreciate your patience though.
Cheers,
Bad news. As many of you have probably noticed, the Amazon Conduit was not fixed in the last week's release. Unfortunately, there was an undetected bug that is preventing the conduit from working.
We are working on this bug fix and hope to have the Conduit back up and running this week.
I will keep you posted.
Thank you for being so patient.
Blog Action Day is every October 15th, when blogger are asked to post something about a single issue to show our strength and conviction as an online community. It's a great way to feel connected to the greater good, and the participation of so many bloggers to support the world's leading non-profit organizations is something you can do to help, right now. By blogging today, you're supporting some of the world's leading non-profits and sharing your voice for change.
This year's topic is climate change, and we'd love to read your thoughts on the topic. If you participate, leave us a link to your post in the comments, so we know to check out your post!
Go to www.blogactionday.org to learn more, get a badge for your blog showing your participation, and see some ideas for your post on climate change.
Can't wait to read your posts!
~ daisy
